The problem with illness is that it can threaten to demoralize you, picking you apart at the seams, unravelling you until all that’s left is a ghost of who you once were.
At least that’s how, on the worst days, I feel. Like now. Like yesterday. When every part of me hurts and when I feel no one understands, not even my husband, because it hurts and all I want to do is stop and rest and crawl into a corner, away from everyone, and cry. And stop hurting.
It’s not just the pain that’s debilitating. There’s a stronger emotional and psychological repercussion at play, and anyone who’s experienced chronic pain, fatigue or illness will probably agree with this. At its worst, I feel like a failure. I can’t go to my son’s PTA meetings or run around with my son (I’m a horrible mother). I can’t go to work or head a student club (I’m no good as a teacher, colleague, worker). I can’t write (I’m never going to be considered a serious writer). I can’t… well, you get the picture. Consciously, I KNOW this is bullshit. It’s but a moment in time. It will get better; I will do those things, even if a little slower. But there’s a moment when I’m deep in despair and pain that I almost feel as if this illness is taking over. It’s all I can do to articulate that I can’t do this, that I’m drowning because of all the responsibilities which, though normal, seem great when everything hurts and it’s all I can do to get out of bed. And I collapse into a heap of tears and frustration and anger. And I sleep, restless. It’s a vicious cycle of pain and guilt and frustration.
The cycle breaks, though. It takes lots of deep breathing and crying and self-talking and sometimes meds to get back into a place that, though not as hopeful or optimistic as when I’m in remission, is enough that I can think of the cycle of the disease, that if I’m in a flare, with time (though how much time is never a given) I will go back to feeling better. That it’s possible to feel better again.
It’s that thread of silver that starts getting me back together, stitching me up slowly so that I can feel almost whole again.